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Thursday, June 26, 2014

3 Years Post Diagnosis Day - Day 1096


 The day before Ellie’s diagnosis 3 years ago, I took her to the mommy and me swimming class which we had attended for a few months and she loved, but that swimming class was different.  Jeff was out of town, and my good friend had come with me so both kids could still swim.  Ellie had loved the class and never cried once, but that day she cried through the whole class.  At the time I figured it was just because Daddy wasn’t there.  I remember the whole day like it was yesterday, the yellow swim suit that she was wearing, her big smile that was gone and my wondering what was going on.  We got home, and as we walked in, our neighbor’s son who was 15 at the time asked me what was wrong with Ellie’s eye.  I told him that I thought it was swollen from a bug bite.  I had felt something was wrong for several weeks, but couldn’t pinpoint it.  I decided early the next morning to take her in to urgent care, and that is when our lives were forever changed. 

As I reflect back on those days of diagnosis three years ago, I am forever grateful to be where we are now.  Without modern medicine, an incredibly strong daughter who had the will to live, the amazing community of friends and family who held us up during those darkest days, and the grace of God we wouldn’t be where we are today. 

This week Ellie earned her “stripe” ribbon in swimming.  She’s been working towards this ribbon for the better part of the year.  To earn it she had to tread water for 1 minute, swim 38 feet, dive down to six feet from the middle of the pool, jump in without goggles, do a dive in, and the one that held her up the longest, swim 16 feet underwater at the bottom of the pool.  We were blessed to have an amazing vacation to Maui a few weeks ago, and most of the time was spent in the pool or at the beach.  Without fail, every day in the pool, Ellie asked for the rings so she could practice diving for them and swimming underwater.  Her determination and ability to continue to work hard at something until she gets it is truly amazing. 

Three years ago today, we had no idea what the future held for our El-Belle, to be at the place we are now is truly the greatest blessing ever.  Sure, things could change with one blood test, but for now we are living every day to the fullest and enjoying every minute with Ellie and Timmy.  To all our friends and family have supported us and continue to support us on this journey, we are forever grateful.

Polly

June 2011

June 2014